BFM: The Business Radio Station – Neurofibromatosis
September 27, 2013 4 Comments
BFM: The Business Radio Station – Neurofibromatosis.
Dr Lee Moon Keen was interviewed on the topic of Neurofibromatosis, a hereditary condition associated with nerve sheath tumours and markers on the skin, in the form of cafe au lait spots and armpit freckles. Medical, genetic and social aspects of the condition were discussed.
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M K Lee Neuro Clinic 
Hi doc,
My son (10 yr) have syndrome Tourette’s from almost 3yr ago. First time he have tics vocal and movement. But my wife training him with CBIT method and tics vocal already reduce much better. But for tics movement it hard to reduce. We do not want use medicine to reduce our son tics, because we worry for side effect. So I need ask you what method do you use for syndrome tourette chid patients ?
Thanks for your reply.
Hendra
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Dear Hendra, I am happy to know that psychological method is so beneficial for your son. However, medication is commonly needed when that is not sufficient. You have to balance the risks of psychological damage resulting from the motor tics against any medication side effects. Whether to add on medication is a hard decision to make. It has to be individualised to your child’s case. Best wishes.
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Dear Dr. M K Lee,
I am an expatriate in Johor Bahru, Malaysia. I have a 8+ years soon (Tausif Hussain) who had cases of seizures which was diagnosed as cause of epilepsy and still under medication since he was 2 years of old. His EEG records that he has epileptic form of discharge, while we cannot see the seizures happening for last 3 years. His brain MRI – done first time at 20 months of age shows he has “Periventricular leukomalacia”
He also has developmental delays and thus need special support from both health (motor) and education perspective. Tausif he has been identified having challenge in vision, impacting his development in many ways.
With all these brief challenges, I would like to visit your clinic to get your support and advise on proper medication for Tausif. Please note he is currenly takeing Kepra 250 MG 2 times a day and Frishium 5 mg once in a day.
Since I am not familier with the country and medical services yet, apprecaite, plese advise how can I get your appointment
Sincerely Yours/Tausif’s Father.
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Dear Mr Mahmud
Thank you for your enquiry. Please see your email for a private reply.
Best regards.
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